Here is My Question:
I'm a 36 year old female, diagnosed in 2016 with non-progressive relapsing MS; 20+ brain lesions and 4 spinal cord lesions (C2, C6, T3, T4). I'm on Rituximab (1 new brain lesion 2017, everything else great since).
My legs have been sore for a few weeks so I contacted my neurologist...existing lesions, and I refused medication. My right loosened up but shakes (as usual). For the past two days, my left leg is very heavy-more numb than usual-feels like it's a tree trunk, and I cannot easily go up stairs. Can start with right, but left can't support (pain and weakness). I am sure I am not as severe as others on here, but I don't know what to do when I start to feel like I am losing mobility. What can I do? Do I contact my neurologist? Live with it? Rest? How long should I tolerate it? Meanwhile, do you have any alternative therapies that might be helpful?
It sounds like you have new or worsening weakness and numbness in your left leg affecting your function that has persisted for at least 2 days. You are either experiencing a relapse or a pseudo-relapse. A pseudo-relapse is usually caused by an infection, often a urinary tract infection.
Either way you should contact your MS specialist for advise. Relapses can and do occur in people on rituximab, even though it’s a very good treatment.
Revere (Rip) Kinkel MD
Professor of Clinical Neurosciences
Director of the Multiple Sclerosis Program
Clinical Neurosciences Director
University of California San Diego
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