I'm a caregiver for my husband who has MS and I'm struggling and need help. When I search the web, they say "accept help, get enough rest, make time for leisure, be good to myself, share my feelings with others, etc." This type of advice doesn't help because of course I know I should do these things, but that is easier said than done! Are there any classes or real help for caregivers?
We checked with Matthew Farr, who is a physical therapist and manager at the Mandell Center for MS in Hartford, CT. He is a trainer for a program called POWERFUL TOOLS FOR CAREGIVERS which is a great program for caregivers of those with MS.
This 6-week class (they are offered all around the country) focuses on:
The class is only once a week to make it manageable. You can call 1 (508) 719-6980 or email them to find out when classes will be held in your area.
Here is another link for caregiver resources: CAREGIVER RESOURCES
People often ask me how to get their friends and family to follow their doctor’s recommendations and we, as doctors, often wonder if our patients, particularly those who come in alone for visits, are taking their medications as directed and following other non medicinal recommendations. There is an entire field of research devoted to this topic and some general recommendations that are useful. The most important thing to remember is that this is an ongoing process. Even if a person follows a recommendation initially this rarely lasts without persistent follow-up and attention to the process outlined in this blog.
Let’s first consider the concept of adherence and the process anyone goes through when making a decision. This will help you see where things can break down.
PLEASE NOTE: The information/opinions on this site should be used as an information resource only. This information does not create any patient-HCP relationship, and should not be used as a substitute for professional diagnosis and treatment. Please consult your health care provider before making any healthcare decisions or for guidance about a specific medical condition.