Q:"I am entering my 8th year with PPMS. What is being done to help and are any comparisons to check with?"
A: Primary progressive MS (PPMS) poses many challenges, not only for the person with this type of MS, but also to the medical and research fields. Although there remain fewer treatments for people with progressive MS, there is a great deal of energy in the research field focused on improving the understanding and care of progressive MS.
In 2012 several organizations joined forces to begin an attack on progressive MS, as the International Progressive MS Collaborative. The MS societies of Canada, Italy, the Netherlands, the UK and the USA, and the Multiple Sclerosis International committed to move forward and became the International Progressive MS Alliance. In 2014, the Progressive MS Alliance developed policies and principles to govern their work, and created a funding mechanism specifically for research in progressive MS. For more information about their work, please see the link http://www.progressivemsalliance.org/. To find out more about the research they are funding, go to http://www.progressivemsalliance.org/research/research-projects-funded-by-the-alliance/
Please also see the entry on 9/19/14 to read a bit more about some other exciting research in people with PPMS... READ MORE
Deborah Backus, PT, PhD, FACRM
Director of Multiple Sclerosis Research
The Eula C. and Andrew C. Carlos MS Rehabilitation and Wellness Program at Shepherd Center
PLEASE NOTE: This information/opinions on this site should be used as an information source only. This information does not create any patient-HCP relationship, and should not be used as a substitute for professional diagnosis and treatment. Please consult your health care provider before making any healthcare decisions or for guidance about a specific medical condition.