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Here is My Question:
I know you can’t give me specific medical advice but I have 2 questions if you have time to answer them.
1. Regarding covid antibodies. I received the Pfizer vaccine about 4 months after my last Ocrevus infusion and the second dose about 3-4 weeks prior to the next infusion. My doctor wanted to test my antibodies because she is not convinced of the effectiveness. She checked the covid antibodies to the spike protein and they were totally negative. Does this have any value or should I assume it was ineffective? Do you ever suggest people get a second vaccine if they didn’t develop antibodies?
2. This is regarding misdiagnosis. I was dx in 2018 and now on ocrevus. I accepted the diagnosis but I still have moments of denial. I am wondering if I have a clear cut dx or one i should second guess. initial symptoms never required hospitalization. started with what I now know as the hug. Around the lower ribs/chest and upper abdomen. IT has always been the worst symptom to the point of almost not being able to breath. I have it controlled on trileptal. I had memory loss of entire situations and had an EEG (negative) and MRI. The MRI shows lesions in all the typical spots including “dawsons fingers”. Other MRIs showed 2 spinal cord lesions. I had negative o bands though. I have major cognitive issues and now on disability. Main things are tremor, hug, memory, word mixing, numbness/tingle, spasms and spasticity, temp issues, FATIGUE. Should I question the diagnosis since I don’t have o bands? It seems to just get worse with no relapse or new lesions.
Very good questions and hard to answer. Here are my thoughts:
Revere (Rip) Kinkel MD
Director of the Multiple Sclerosis Program
Professor of Clinical Neurosciences
University of California San Diego
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