Here is My Question:
The fatigue I have is terrible and severely impacting my life! I don't sleep well so I'm sure that isn't helping. What can I do?
One of the biggest impediments to getting out and about for persons with Multiple Sclerosis is fatigue. Yes, fatigue, that bone weary, heavy, melt into the floor feeling that makes you want to stop doing what you’re doing and sit (or sleep). It affects everyone differently. It makes anything requiring thought or motion more difficult (which is everything). It doesn’t matter if you are on your own or you have family and friends to help- fatigue is something that needs to be managed for you to be at your best. So let me ask you …
When you go to your medical professional and make this statement they are going to try to tease out whether it is truly MS related fatigue, or something else. They are going to ask how well you are sleeping, and how many hours you are sleeping. They may ask about your sleep schedule- some people who are no longer working can get their sleep cycles turned around. So even if they are getting enough sleep, but on an odd schedule, it can leave them feeling tired. They may ask about what you are doing before you try to go to sleep. They may ask if you have sleep apnea. They will ask if you have a history of depression. They will ask if pain is keeping you up at night. You see where I am going with this. Just because you are feeling exhausted during the day does not automatically mean it is MS related fatigue, it could just mean you are not getting enough sleep.
Getting to sleep can be a challenge for many of us- MS or not. We worry, we think, and we plan. We just lay there. Here are some ideas…
Here are some sites that I think have good information about going to sleep…
And if you are losing sleep because your kids can’t go to sleep…
Lori Kostich M.S. CCC-SLP, MSCS
Mandell Center for Multiple Sclerosis Treatment and Research
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