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MS - When Walking Fails

1/24/2014

 
Shortly after moving to Boston in 2002 I met Lisa Iezzoni, an amazing physician and researcher, who was then co-director of research in the Division of Medicine at Beth Israel Deaconess Medical Center. Lisa was wheelchair bound after 20 plus years of multiple sclerosis and an inspiration to colleagues, students and patients with disabilities. She had fashioned a remarkable career for herself studying health care experiences, outcomes and discrepancies among people with disabilities and eventually moved to Massachusetts General Hospital to become Director of the Morgan Institute for Health Policy.  Her first book, When Walking Fails, is a must read for people with mobility impairments and the health care providers who care for them. This is a literal step-by-step description of the different types of mobility problems, how these problems affect comfort, attitudes, daily activities and relationships, and strategies to improve these problems. The book is narrated in a very personnel manner with frequent vignette’s and interviews that clearly delineate the personal and society barriers confronting individuals with disability. Read it once or multiple times; it will help. If still interested in the topic after reading this book, I also recommend Lisa’s second book, More Than Ramps: A Guide to Improving Health Care Quality and Access for People with Disabilities (coauthored with Bonnie L. O’Day), published in 2006


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  • Home
  • About Us
  • Virtual MS Center
    • Q & A for Virtual MS Center
    • Read About Our Virtual MS Center Staff
  • News & Resources
  • Seminar Registration
  • Health & Wellness
  • Blogs
    • Physician Blog >
      • Healthcare Provider Blog
    • Physical Therapy Blog
    • Patient Blog
    • Caregiver Blog
    • Research Blogs >
      • "Ask Dr. Debbie" Research Blog
      • Multiple Perspectives In Multiple Sclerosis Research Blog
  • About MS
    • What is MS?
    • Diagnosis
    • Treatment
    • MS Tips
  • Symptoms
    • Balance and Walking Issues
    • Breathing/Respiratory
    • Bowel Dysfunction
    • Cognitive Dysfunction
    • Crying/Laughing Uncontrollably (PBA)
    • Depression and Anxiety
    • Dizziness/Vertigo
    • Dysphagia
    • Fatigue
    • Foot Drop
    • Hearing or Smell or Taste Changes
    • Heat Sensitivity
    • Leg Weakness
    • Loss of Hand Dexterity and Coordination
    • Memory and Mutliple Sclerosis
    • Migraines
    • Numbness/Tingling/Altered Sensation
    • Nystagmus and Oscillopsia
    • Pain
    • Sexual Dysfunction
    • Sleep Issues
    • Spasticity/Spasms/Cramps
    • Speech/Swallowing
    • Urination/Bowel Problems
    • Vision
  • MS Clinics
  • MS Topics
    • Pregnancy and Infertility
    • Caregivers and Family Members
    • Employment and MS
    • Medical Costs and Insurance
    • Pediatric Multiple Sclerosis
  • Register With Us
  • Terms of Use/Privacy/HIPAA
  • MS HealthCare Journey