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I have a lesion from scan in October 2015. Now in December 2016, I have had 3 more scans and I still have active flaring. It is the same lesion. My MS doctor is ordering more blood testing and more scans of my body to see what is going on. He says it is abnormal for a lesion to be active for over a year and has continued to be active for over a year. Can you help me to understand what may be going on here?!!! Answer: The majority of enhancing (“active”) lesions in MS patients cease to enhance within a month. Persistent enhancing lesions for more than 6 months occurs rarely (< 5 %) and should prompt further investigation before assuming this is a chronically enhancing MS lesion. Possible causes of persistent enhancement for over a year (other than MS) include benign vascular malformations, such as capillary telangiectasia or cavernomas, a granulomatous process and some tumors. It is unlikely that an infectious process would cause asymptomatic enhancement for over a year. Further investigations to help sort out the cause could include gradient echo imaging (GRE) if not already done, MR spectroscopy, FDG PET scan and spinal fluid analysis Revere (Rip) Kinkel MD Director of the Multiple Sclerosis Program Clinical Neurosciences Director Professor of Clinical Neurosciences University of California San Diego
Carolyn Carroll
2/2/2017 08:30:43 pm
I had a full body CT Scan. I had follow up with MS Specialist and results didn't show anything to change my DX. Doctor said that 1/100,000 can have a lesion that can flare for extended time. I must be the lucky one. I continue to use Copaxone 3 times a week. Doctor is ordering physical therapy to help me with my leg weakness. And ordering a new medication for fatigue.
Carolyn Carroll
2/14/2017 12:33:55 pm
I replied to 12/30/16 question on "Is it abnormal for a lesion to be active for over a year!" Doctor stated that 1/50,000 or 1/100,000 ms lesions can flare for extended time. Do you have any comments to this? Appreciate any understanding! Comments are closed.
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