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Inactive vs Active Multiple Sclerosis

6/21/2015

 
Here is My Question:
I am in search of a good MS Neurologist and have found one. I phoned the reception and they need an email from my current Neurologist or doctor. She asked what sort of MS I have and I told her inactive. She said to me "okay so it is not urgent" This is in France. I notice every time i say inactive, it seems its not important to be treated. I have a lot of pain in my right leg and I need a good Neurologist just to prescribe me some medicine for this pain. So is inactive not bad enough????regardless of my pain?? How does a Neurologist look at inactive versus active? Mind you inactive can turn active so I'm confused??

Answer:
The response that you received regarding your “inactive” MS statement certainly suggests a lack of understanding of the new MS Classification system.  Whether a person is ‘active’ or ‘inactive’ has little to do with either the number of health problems or symptoms they are experiencing or their severity. In your particular case being ‘inactive' simply means that you have not experienced a relapse or new a lesion on MRI since your last evaluation. 

In fairness to your doctors we all try to prioritize appointments for patients getting rapidly worse, either from a relapse or disease progression. This does not mean your concerns are not important or even urgent. Living with significant pain can create a number of detrimental long term affects. I would suggest avoiding the ‘active’ or ‘inactive’ terms when requesting an appointment and simply state that you have severe pain related to MS and need help.

Good luck

Revere (Rip) Kinkel MD
Director of the Multiple Sclerosis Program
Professor of Clinical Neurosciences
University of California San Diego
Mascha brautigam
6/20/2015 10:13:10 pm

Very much apreciate your comment.Thank you.I never understand fully and its very frustrating when you get told you are not so important.In France it seems very old fashioned compared to America or the UK.Even Australia where i am from,seems more up to date.I do live in Monaco and health system is good brsides MS.Thank you again.Regards,Mascha

Shirley pardee
9/7/2016 03:22:10 pm

What is in active mean in ms


Comments are closed.

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  • Blogs
    • Physician Blog >
      • Healthcare Provider Blog
    • Physical Therapy Blog
    • Patient Blog
    • Caregiver Blog
    • Research Blogs >
      • "Ask Dr. Debbie" Research Blog
      • Multiple Perspectives In Multiple Sclerosis Research Blog
  • About MS
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    • Depression and Anxiety
    • Dizziness/Vertigo
    • Dysphagia
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    • Foot Drop
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    • Nystagmus and Oscillopsia
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