My doctor took me off Gilenya because of low WBC and below even the normal low lymphocytes. I have been off about 3 weeks I have noticed some of the symptoms I had before I started Gilenya have come back like the chest hug and trigeminal neuralgia stabbing facial pains. We did have a cooling off here in the weather I could relate it to that but thought I would ask. Is the Gilenya still in my system? How long does Gilenya stay in your system? I have follow up lab work to do in a few weeks.
Gilenya is generally out of your system completely within a month; in fact you need to go through another first dose, 6 hour observation if you are off Gilenya for more than 2 weeks. So your report of a return of symptoms within 3 weeks of stopping Gilenya is very possible.
Revere (Rip) Kinkel MD
Professor of Clinical Neurosciences
Director of the Multiple Sclerosis Program
Clinical Neurosciences Director
University of California San Diego
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