I have severe lower extremity spasticity & having intercourse is near impossible. I still walk with a walker short distances but my legs need bending when changing position. I’ve tried every medication and get full doses of Botox in my quads every 4 months- I can look after own peri care but sex isn’t happening- is there anything else I can do! Oh and I tried Cannabis with limited response. Is there a medication that could make me floppy for a bit and yet not loopy and weak? Oh and I am a woman in a happy marriage and only 55- I also understand there are other options but wanted to know if there was anything else? I react in spasm to showers so touch is not always easy.
The best option for controlling severe spasticity and spasms in the lower extremities is an intrathecal baclofen pump (intrathecal means administered into the spinal fluid). This baclofen is administered in a liquid form by a small programmable pump implanted under the skin attached to a small catheter tunneled under the skin around to your back where it is threaded into your spinal fluid space. The liquid baclofen bathing the spinal cord will reduce or eliminate all spasticity and spasms depending on the infusion rate. The rate can even be changed throughout the day to adjust to your needs.
I would definitely look into this treatment for your degree of spasticity.
Revere (Rip) Kinkel MD
Professor of Clinical Neurosciences
Director of the Multiple Sclerosis Program
Clinical Neurosciences Director
University of California San Diego
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