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Here is my athletic life history: In my late 20's I was diagnosed with bilateral TN, 30's the visual, fatigue, isolated muscle issues intermittent episodes began i.e. blurred vision dx unilateral pale optic disc, left forearm flexor/extensor without cause dx torn off bone etc, fatigue- normal blood work days/weeks of building could be burning no energy to get out type fatigue to lesser levels depending on daily physical activity, hot weather, water temperature etc. Worst episode Mid 40's dx diplopia, unilateral pale optic disc, unilateral rapid horizontal jerk with first time balance issues (fall backwards eyes closed, head lift eyes up, unstable uneven surfaces), gate (walking string puppet), speech (drunk slur, get stuck and elongating sounds) hand eye coordination off action, no no head tremor, cognitive - lost all nouns (family names, objects etc)....dx age related senile dementia due to chronic white and grey matter lesions but I was only 45. Took 8 months with incomplete recovery though definite improvements showing before the next episode happened, first summer after that episode the intermittent bladder incontinence started. Now early 50's, still experiencing everything mentioned above either episodic worsening or as an everyday issue, some neurological related diagnostic evidence ie clinical abnormalities Romberg sign, unilateral ankle clonus, visual abnormalities diplopia, unilateral nystagmus and pale optic disc along with healthy blood work ups, mental health and vascular ultrasounds etc Does it honestly sound like it could be MS as my GP and vascular specialist believe and if so, after all these years is it really worth the expense of getting diagnosed if it is likely too late to be of any help? Thank you in advance!
A person with MS could certainly describe a history very similar to yours. It is definitely worth getting diagnosed and managed correctly if this is the case. I highly recommend you begin by seeing someone who specializes in MS and related conditions.
Revere (Rip) Kinkel MD
Professor of Clinical Neurosciences
Director of the Multiple Sclerosis Program
Clinical Neurosciences Director
University of California San Diego
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