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Preventing Pain from Multiple Sclerosis

1/3/2014

2 Comments

 
I know it's not a sexy topic but...

When you have to start your blog off with, "I know it's not sexy topic but," you don't really expect it to go viral. However, it is an important topic for many people who suffer from pressure sores. No one thinks about skin breakdown and pressure sores until they experience just how painful they can be. I went on a mission two years ago to make sure that I never got another pressure sore again and so far so good!  If you have limited ability to feel sensation it can be difficult to identify pressure sores before they begin to develop. My local rehabilitation hospital used a pressure mapping system to see which wheelchair cushion would maximize my circulation. After testing over a dozen possible cushions I ended up with a high profile Roho cushion which has been a Godsend:

Now I can sit through a movie without experiencing the deep seated (no pun) pain which was interfering with my ability to get on with my life. I am looking forward to seeing the Hobbit this weekend - pain free!

My next stop is to visit Jordan's Furniture which has a state-of-the-art pressure mapping system in each of their stores designed to help people buy the perfect mattress. Pressure mapping is free and doesn't require an appointment:

http://www.jordans.com/sleep-lab/jordansdifference

I first learned about this from my physiatrist (
Physiatrists, or rehabilitation physicians, are nerve, muscle, and bone experts who treat injuries or illnesses that affect how you move) who said that he recommended this service to many of his patients and they were quite pleased with the results.

Next time I will tell you all about my electric wheelchair which puts me into a full supported standing position! It looks and works a lot like a Segway and provides me with the ultimate pressure relief. Getting insurance approval for my new wheelchair was almost as difficult as having a broken leg and giving birth to my son! More on that later…

Limitless Lizzie

2 Comments
Enrico
1/12/2014 12:27:24 am

Hello Lizzie,
Thank you for your blogs; They are inspirational. How do you balance everything that you do and knowing when to pull back due to fatigue, stress, or symptoms associated with MS? This is a problem for many or most with this disease.
Thanks, Chris

Reply
Limitless Lizzie
10/10/2016 08:57:50 am

Hi Chris – great question! For years I struggled with work/life balance. The truth is, I just had to learn to prioritize the things that meant the most to me and my family. Work, exercise, and family are my sole priorities. I am training myself to listen to my body. I hope this is helpful. I wish you all the best in your journey. Limitless Lizzie

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  • Home
  • About Us
  • Virtual MS Center
    • Q & A for Virtual MS Center
    • Read About Our Virtual MS Center Staff
  • News & Resources
  • Seminar Registration
  • Health & Wellness
  • Blogs
    • Physician Blog >
      • Healthcare Provider Blog
    • Physical Therapy Blog
    • Patient Blog
    • Caregiver Blog
    • Research Blogs >
      • "Ask Dr. Debbie" Research Blog
      • Multiple Perspectives In Multiple Sclerosis Research Blog
  • About MS
    • What is MS?
    • Diagnosis
    • Treatment
    • MS Tips
  • Symptoms
    • Balance and Walking Issues
    • Breathing/Respiratory
    • Bowel Dysfunction
    • Cognitive Dysfunction
    • Crying/Laughing Uncontrollably (PBA)
    • Depression and Anxiety
    • Dizziness/Vertigo
    • Dysphagia
    • Fatigue
    • Foot Drop
    • Hearing or Smell or Taste Changes
    • Heat Sensitivity
    • Leg Weakness
    • Loss of Hand Dexterity and Coordination
    • Memory and Mutliple Sclerosis
    • Migraines
    • Numbness/Tingling/Altered Sensation
    • Nystagmus and Oscillopsia
    • Pain
    • Sexual Dysfunction
    • Sleep Issues
    • Spasticity/Spasms/Cramps
    • Speech/Swallowing
    • Urination/Bowel Problems
    • Vision
  • MS Clinics
  • MS Topics
    • Pregnancy and Infertility
    • Caregivers and Family Members
    • Employment and MS
    • Medical Costs and Insurance
    • Pediatric Multiple Sclerosis
  • Register With Us
  • Terms of Use/Privacy/HIPAA
  • MS HealthCare Journey