I remember feeling liberated when I first tried my power assist wheels on my manual wheelchair. I had met with many wheelchair consultants over the years but no one had ever mentioned power assisted wheels until I met a physical therapist 10 years later who thought they would be perfect for me.
The benefits are: They fit on your manual wheelchair so your chair is still collapsible which is nice if you are traveling in a car. Also, they offer considerable power while still giving you an opportunity to get some exercise by pushing your wheelchair. You just plug them in overnight and they are charged for the next day.
The drawback is that they are heavy and cost around $7000. Most insurance companies do approve them with a physician's recommendation.
If you need a little more than a regular manual chair offers but are not ready for a power chair you may want to consider looking into power assist wheels.
If you are interested, check out the following link (http://www.frankmobility.com/docs/EMOTION%2520Brochure.pdf). These are the wheels that I have and I really like them. -- Limitless Lizzie
Recently the weather has turned hot and humid which usually spells disaster for me. Usually over the past few years during the summer I would wake up early and get as much done as I could before the heat really kicked in. If I had to be outside in the heat I would wear an ice vest and whatever other cold packs I could somehow attach to my body to help keep me upright. Generally I could make it through outdoor activities as long as I was not in the direct sun for too long and didn’t participate in any physical activity. Saying this out loud I feel like a gremlin, except you can feed me after midnight!
Last summer I put together a Muckfest team with my friend Denise who also has MS, together with the help of our friends we raised over $5,000. Our big fundraising event was a huge Sunday BBQ in the park, a ton of planning and effort went into making it happen and I wanted to make sure that everyone got their money’s worth. Of course the day of the event it was close to 90 degrees and very humid but I had planned on it and was armed with bags of ice and the rest of my cooling gear. Even with buckets of ice and the precautionary measures I took I didn’t last and eventually became so dizzy that I got sick and had to be taken home and missed out on the ribs that Smith Clique BBQ had been smoking all day.
Fast forward to this summer and the weather is of course becoming hot and humid again but it hasn’t been bothering me much at all, is this another bonus of the paleo/Wahls diet? There wasn’t any hard labor involved but I got to enjoy some great summer activities this past weekend and I didn’t melt, I made sure to stay hydrated and found the shade whenever possible. I spent six hours standing around in the sun smoking ribs and this time I made it to the end and got to eat some, they were worth the wait!
Be a Warrior Today,
My fascination with cortisol continues. A month or two prior to taking IV Steroids, I did the Adrenal Stress Test Panel. It is a test that is done by collecting saliva samples at four points throughout the day. From this, you can see how much cortisol your adrenal glands are producing during the day. It cost $120 and my insurance did not cover it. If you are curious to see where your body’s stress response is at but do not have the money to cover the test, you can begin to pay attention to what your energy levels and responses to stimuli are at these times: 8-9am, noon, 4-5pm, and 10-12pm. For example, I was not surprised that my cortisol levels were above the normal range in the morning (I wake up amped, usually after having vivid dreams for several hours), dropped to their lowest levels at noon (this is usually when I am desiring a nap and when I decide to go nowhere if I have not already left the house), and then proceeded to climb back up through the evening and late night (why it is harder to wind down and go to bed the later that I stay up.)
Why is it important how much cortisol you produce during the day? Well, it is your stress response. So if your cortisol production does not follow a circadian rhythm (of producing the most cortisol in the morning, still within a normal range, and then steadily tapering off the rest of the day) then it is an indication of adrenal fatigue, which is a further indication of chronic stress. I might argue that if every person with MS got their adrenal levels checked, a high correlation of adrenal fatigue and chronic stress would be found. In America, we often call this Type A personality and I have seen this in a lot of MS literature- that there is a high correlation of Type A personality and MS. But what makes us Type A? For me, I like to have everything just the way I want it when I want it. I build up grand stories and expectations and do not handle the disappointment well. Since I do this throughout the day, I create a lot of stress for myself. And it is all about little things or things that actually do not exist. So chronic stress has nothing to do with whether you face trauma and tragedy every day, it’s just the way that you deal with life. And if you didn’t have chronic stress before MS, dealing with a chronic illness can cause it.
After meeting with my functional medicine doctor, he directed me towards evening out my cortisol levels during the day, NOT lowering them as I was previously touting in a blog. I started taking Coenzyme Q10 100mg three times a day with meals (with lechithin or some other form of fat in the pills), an herb called Rhodiola Rosea twice a day inbetween meals (Gaia makes a variety) and straight licorice tea throughout the day (Traditional Medicinals is a great brand.) For long term adrenal support, he recommended the supplement Adrenal Response from Moss Nutrition. BUT, he emphasized that none of this explains how I got to the point of adrenal fatigue and herbs would not get me out of it. Indeed, the yoga and meditation I do has a greater impact on stress relief than anything else. If you find that you still run hot and tend to get riled up easily, it is okay to throw in some herbs that calm the nervous system. Recently I have used tinctures of passionflower and kava kava. Kava kava can affect the liver so depending on what disease modifying MS treatment you are on, you should be careful with this and run it over with your doctor. On the flip side, drinking coffee or anything with caffeine only ramps up your cortisol production and your nervous system.
A lot of us experience MS fatigue and a lot of us are on prescription medication for it. Many have grown accustomed to dealing with it as a primary symptom, but what if we could get our adrenals back up to normal levels o
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Important Safety Information
Before beginning treatment, you should discuss the potential benefits and risks associated with Rebif with your healthcare provider.
Rebif can cause serious side effects. Tell your healthcare provider right away if you have any of the symptoms listed below while taking Rebif.
Rebif will not cure your MS but may decrease the number of flare-ups of the disease and slow the occurrence of some of the physical disability that is common in people with MS.
Do not take Rebif if you are allergic to interferon beta, human albumin, or any of the ingredients in Rebif.
Before you take Rebif, tell your healthcare provider if you have or have had any of the following conditions:
Tell your healthcare provider about all medicines you take, including prescription and over-the-counter medicines, vitamins and herbal supplements.
The most common side effects of Rebif include:
Tell your healthcare provider if you have any side effect that bothers you or that does not go away.
These are not all the possible side effects of Rebif. For more information, ask your healthcare provider or pharmacist.
Call your doctor for medical advice about side effects.
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.
Rebif is used to treat relapsing forms of MS to decrease the frequency of relapses and delay the occurrence of some of the physical disability that is common in people with MS.