So, as I sit here watching it snow, feeling like vacation is so forgotten and wishing spring was here, I'm contemplating what would be helpful to blog. I realize that we have great doctors blogging answers to questions on this site, however I'll just throw it out there that maybe some of you have more personal questions that you need an opinion or help with. Questions that you don't want open in public. What are your thoughts everyone?  I would be happy to give anyone my personal email if they need to discuss something on a more personal level.  I do have a disclaimer though, although I am a registered nurse, I will be replying as a patient not a provider and will always defer any medical opinions and comments to our MDs. Would like to hear your comments.

-Susan

My MS health care journey started in 2010 with a diagnosis of Relapsing Remitting MS. Receiving the diagnosis at age 34 was a shock and I felt overwhelmed and lost. “What now?” I asked the neurologist. “Well you will need to pick one of these drugs” he said as he handed me a huge stack of literature on Avonex, Rebiff, Copaxone and other therapies that were available at the time. “What’s the difference?” I quietly asked. “Really not much, just the number of injections you have to get.”

Luckily that was the last time I ever spoke to that particular neuro and things have gotten much better since on this winding, bumpy and wild ride that is being a MSer. After the initial darkness from the diagnosis lifted I contacted an old friend that I have, that suffers from Progressive MS and she helped me find my way by suggesting a neurological disorders clinic and advising me on the different therapies and how they had affected her health. I have since moved on to the MS Clinic at the University of Michigan but in my time of need it was very comforting to know that I had a friend that was there to help guide me during the first leg of my journey.

Healthcarejourney.com is aiming to assist you in your times of need relating to Multiple Sclerosis by consolidating many great resources all in one place. Take a few minutes to explore the site and see what you find that will help you.  For example, read a blog by Dr. Revere Kinkel, who is a leading specialist in the field of MS, about what you should know and think about when diagnosed with MS... http://www.healthcarejourney.com/4/post/2013/07/the-diagnosis-of-ms.html Also visit our "treatment" page and look at all the different resources... http://www.healthcarejourney.com/treatment.html If you don’t see something you need let us know, if there is a topic you want covered send a message and we will see what we can do. Let’s have a conversation about our journeys, how did yours begin?

Be a Warrior,
Donn

My health care journey started in 2010 with a diagnosis of Relapsing Remitting MS. Receiving the diagnosis was a shock and I felt overwhelmed and lost. “What now?” I asked the neurologist. “Well you will need to pick one of these drugs” he said as he handed me a huge stack of literature on Avonex, Rebiff, Copaxone and other therapies that were available at the time. “What’s the difference?” I quietly asked. “Really not much, just the number of injections you have to get.”

Luckily that was the last time I ever spoke to that particular neuro and things have gotten much better since on this winding, bumpy and wild ride that is being a MSer. After the initial darkness from the diagnosis lifted I contacted an old friend that I have, that suffers from Progressive MS and she helped me find my way by suggesting a neurological disorders clinic and advising me on the different therapies and how they had affected her health. I have since moved on to the MS Clinic at the University of Michigan but in my time of need it was very comforting to know that I had a friend that was there to help guide me during the first leg of my journey.

Healthcarejourney.com is aiming to assist you in your times of need relating to Multiple Sclerosis by consolidating many great resources all in one place. Take a few minutes to explore the site and see what you find that will help you. If you don’t see something you need let us know, if there is a topic you want covered send a message and we will see what we can do. Let’s have a conversation about our journeys, how did yours begin?

Have a great day,

--BLOGGER DONN