With MS the F word is FATIGUE! Most people get it but not all and in varying degrees. Sometimes it is very bothersome and many things can trigger it so one feels even worse. Being tired is different than being fatigued.
Sleep takes care of tiredness but not fatigue and that is the problem. This was one of first big symptoms I started to have and it was unrelenting and over powering. I started to miss days at work and even if I got there felt like doing nothing. If it was a warm day then I felt like someone had poured Jell-O in me and poured cement on top of me, I could barely move!
NO matter how much sleep I got it didn’t help. I would go to bed exhausted and get up feeling tired and drained. Well in time I got diagnosed with MS and to this day no one really understands why this is such a problem with MS but it is!
I can fall asleep anywhere at any time (I try not to of course). I have sat in the DR’s office doing the usual waiting and looking at floor and thinking, “would anyone mind if I just curled up and went to sleep” that’s how it is sometimes.
SO through the years this is what I have done to fight this.
I may not win the war on this but one day at a time as with all MS things and eventually I get somewhere. I have learned to live with it but more on MY terms :)
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