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Can Someone With MS Please Comment on This?

3/3/2014

3 Comments

 
Here is a question that has come in from someone with MS.  If you have experience with this and can comment, please do so!

“I have secondary progressive MS, walk with a wheeled walker, and continue to work although I feel I am losing these abilities rapidly. I have tried many other treatments for my MS (4 different disease modifying therapies, most recently Tecfidera) but none have altered my MS. My doctor is recommending a trial of Tysabri. I am JC virus antibody negative and trying to decide if I should try this medication. Is there anyone reading this with my level of disability or disease type (secondary progressive) or both who can comment on their experience with Tysabri? Studies have not been completed for this stage of the disease and I am looking to gain insight from those with progressive MS who have tried Tysabri or are still on Tysabri."
3 Comments
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  • Home
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    • Q & A for Virtual MS Center
    • Read About Our Virtual MS Center Staff
  • News & Resources
  • Seminar Registration
  • Health & Wellness
  • Blogs
    • Physician Blog >
      • Healthcare Provider Blog
    • Physical Therapy Blog
    • Patient Blog
    • Caregiver Blog
    • Research Blogs >
      • "Ask Dr. Debbie" Research Blog
      • Multiple Perspectives In Multiple Sclerosis Research Blog
  • About MS
    • What is MS?
    • Diagnosis
    • Treatment
    • MS Tips
  • Symptoms
    • Balance and Walking Issues
    • Breathing/Respiratory
    • Bowel Dysfunction
    • Cognitive Dysfunction
    • Crying/Laughing Uncontrollably (PBA)
    • Depression and Anxiety
    • Dizziness/Vertigo
    • Dysphagia
    • Fatigue
    • Foot Drop
    • Hearing or Smell or Taste Changes
    • Heat Sensitivity
    • Leg Weakness
    • Loss of Hand Dexterity and Coordination
    • Memory and Mutliple Sclerosis
    • Migraines
    • Numbness/Tingling/Altered Sensation
    • Nystagmus and Oscillopsia
    • Pain
    • Sexual Dysfunction
    • Sleep Issues
    • Spasticity/Spasms/Cramps
    • Speech/Swallowing
    • Urination/Bowel Problems
    • Vision
  • MS Clinics
  • MS Topics
    • Pregnancy and Infertility
    • Caregivers and Family Members
    • Employment and MS
    • Medical Costs and Insurance
    • Pediatric Multiple Sclerosis
  • Register With Us
  • Terms of Use/Privacy/HIPAA
  • MS HealthCare Journey