Being diagnosed with RRMS was a game changer for me, I remember thinking that I would be dead or in a wheelchair in no time. Since then I have come to terms with my diagnosis and my outlook has dramatically improved. I have been through a few different neurologists and several different drug therapies since arriving in my current situation.
As someone that has been through the shock of being diagnosed and having landed on my feet (usually) I am able to help out my younger brother who was diagnosed this morning. There is so much I want to tell him but I don't want to overwhelm him right off the bat. So many choices of drugs let alone lifestyle changes to consider, where to start. What is the single most important piece of advice I should tell him? I told him to start eating healthier and continue to remain fit so that he could listen to his body.
If you could lend one piece of advice to someone that was diagnosed today, what would it be?
My health care journey started in 2010 with a diagnosis of Relapsing Remitting MS. Receiving the diagnosis was a shock and I felt overwhelmed and lost. “What now?” I asked the neurologist. “Well you will need to pick one of these drugs” he said as he handed me a huge stack of literature on Avonex, Rebiff, Copaxone and other therapies that were available at the time. “What’s the difference?” I quietly asked. “Really not much, just the number of injections you have to get.”
Luckily that was the last time I ever spoke to that particular neuro and things have gotten much better since on this winding, bumpy and wild ride that is being a MSer. After the initial darkness from the diagnosis lifted I contacted an old friend that I have, that suffers from Progressive MS and she helped me find my way by suggesting a neurological disorders clinic and advising me on the different therapies and how they had affected her health. I have since moved on to the MS Clinic at the University of Michigan but in my time of need it was very comforting to know that I had a friend that was there to help guide me during the first leg of my journey.
Healthcarejourney.com is aiming to assist you in your times of need relating to Multiple Sclerosis by consolidating many great resources all in one place. Take a few minutes to explore the site and see what you find that will help you. If you don’t see something you need let us know, if there is a topic you want covered send a message and we will see what we can do. Let’s have a conversation about our journeys, how did yours begin?
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