Being Diagnosed

9/30/2013

Being diagnosed with RRMS was a game changer for me, I remember thinking that I would be dead or in a wheelchair in no time. Since then I have come to terms with my diagnosis and my outlook has dramatically improved. I have been through a few different neurologists and several different drug therapies since arriving in my current situation.

As someone that has been through the shock of being diagnosed and having landed on my feet (usually) I am able to help out my younger brother who was diagnosed this morning. There is so much I want to tell him but I don't want to overwhelm him right off the bat. So many choices of drugs let alone lifestyle changes to consider, where to start. What is the single most important piece of advice I should tell him? I told him to start eating healthier and continue to remain fit so that he could listen to his body.

If you could lend one piece of advice to someone that was diagnosed today, what would it be?

Thanks,
Donn

4 Comments

Denise

10/1/2013 02:37:41 am

Stay positive! Hopefull! Have Faith! If he's anything like you and me Donn, the sense of humor really helps!!! You know that! Get on a preventative medication as soon as you can! It can take up to 3 mo's for the meds to kick in. I say either the IV Tysabri (I just had my 87th infusion) or the newest FDA approved pill that's similar to the results of Tysabri) I know a few ppl who went on it cuz of PML. They say they like it, not really any side effects, but we are all so differant. My advice-get on a strong preventative therapy soon,excerise, try to eat as healthy as you can! Sending good vibes your way;~)

Donn

10/1/2013 03:50:46 am

Thanks for your advice Denise, I'm trying to keep it as positive as possible with him. He is lucky to have caught it so early!

10/2/2013 12:48:07 am

Also, I know a few people who's siblings have it too. Example,one's in a WC and her sister is doing fine. You can't even tell she has it. That's how you're bro might be, a more milder case, ya know? The MyStery disease! THE MAIN THING IS AVOID STRESS!!!

Jessica

10/29/2013 12:51:21 am

Advice?

*to write everything down.... every "symptom" (real or not just in case it happens again)

*ask questions.... In the beginning I didn't know what to ask, who to ask, where to look. For questions in between appointments- write those down too. I used to think "oh I'll ask at my next appointment..." but I always forgot.

*Take time to relax- Having MS can be overwhelming. The feeling of being fine one day and all of a sudden feeling like a mack truck ran you over after you fell down a flight of stairs the next is really disheartening.

In a nutshell those were the least of all overwhelming advices I'd give.

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Being Diagnosed

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