You just arrived home from the doctor’s office and you don’t remember a minute of the drive for you just received the devastating news that you have MS. You recall the doctor saying it was incurable and they don’t know how one gets it and no prognosis can be given as to how it will affect you personally long term.
You are shocked and have a million questions. But the doctor does not have time to go into all that except to say there are therapies one can try designed to help with MS and a lot of research is being done for MS. He hands you some reading material about MS and tells you to make another appointment with your questions. You get out to your car and just sob!
Now home you are reading what the doctor gave you and barely understand any of it and your mind racing in all directions and thinking No, No this can’t be, not this…. it just isn’t me, I refuse to go down this road! What about my dreams, my plans, my family, my goals and how will this affect me and what will be the cost? What do I do now and what help is there?
Now comes the positive part. You now know what you have and you can become proactive about it. Learn all you can about it and it will become quite clear there is a lot you can do to help yourself and you are not alone with it. The mere fact that are reading this site Health Care Journey could very well answer most of your questions and also directs you to other sites that you should also look into. Get to know people that have MS so they can tell you about their experiences and you can make new friends.
After you have gathered as much information as you can about MS then you can design your own plan on how you are going to deal with MS and what works for you. As time goes on medical things get better and technology advances so there IS hope!
Yes MS changes one’s life and yes it might be a tough road but just keep on going for life itself is not easy anyway. DON’T try to go down this road alone either, it doesn’t work! Above all remember there is A LOT of help available and all you have to do is seek and ask for it. Keep in mind that there is NO question or problem that you may have that that many before you have also had and there are answers.
I have had MS for at least 30 years but got the diagnosis about 24 years ago and life went on. At best it has been an interesting and helpful journey, may yours be even better.
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