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How Can I Participate In An Anti-LINGO-1 Clinical Trial?

9/24/2014

3 Comments

 
Q: I live on Long Island and would be interested in participating in a clinical trial for Anti-Lingo. I hear that such a study is being done this year at Stony Brook University. I currently suffer from the early phases of secondary progressive MS, having been diagnosed in 2006 with Relapsing Remitting MS. I am a 55 year-old male, ambulatory (although I do walk with the assistance of a cane. Thank you.

A:
ClinicalTrials.gov and CenterWatch are good places to check regarding clinical trials.  After checking these sites, we didn't see any trials for anti-lingo in the Long Island area, so we contacted Stony Brook University directly and they were not aware of any either.  Finally, we contacted Biogen-Idec and they said to speak with your physician about any possible future trials. 
3 Comments
Tracy Olson
11/1/2014 04:09:25 am

I too am trying to find out where the trials are being held? I live in Boston and was a patient of Dr Kinkel until he moved to UCSD. I have been told there are no trials in the NY/Boson area. This is too bad. I cannot even locate trials anywhere in the States. I was told initially that Hopkins was doing some but I cannot locate any on their site either. When is Biogen going to start doing some Phase II or III trials in the states?????

Reply
Marlon Carvajal
12/9/2015 06:00:05 am

Hello: How can i participate on clinical trials with anti-lingo.
i live in Washington dc

Thank you
Marlon Carvajal

Reply
Sherri Chandler
5/18/2018 06:18:42 am

My sister was born blind in 1 eye and has had Optic Neuritis 3 times which unfortunately hit her good eye. She now has pinhole vision and I stumbled upon Anti LINGO 1. We live in MA and would be interested in finding out about any clinical trials of this new medication if possible. Any guidance would be greatly appreciated.

Reply



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    About Dr. Debbie

    Deborah Backus, PT, PhD is Director of Multiple Sclerosis Research at the Shepherd Center in Atlanta, Georgia. Dr. Debbie received her B.S. in Physical Therapy in 1986, and her Ph.D. in neuroscience in 2004. 

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  • Home
  • About Us
  • Virtual MS Center
    • Q & A for Virtual MS Center
    • Read About Our Virtual MS Center Staff
  • News & Resources
  • Seminar Registration
  • Health & Wellness
  • Blogs
    • Physician Blog >
      • Healthcare Provider Blog
    • Physical Therapy Blog
    • Patient Blog
    • Caregiver Blog
    • Research Blogs >
      • "Ask Dr. Debbie" Research Blog
      • Multiple Perspectives In Multiple Sclerosis Research Blog
  • About MS
    • What is MS?
    • Diagnosis
    • Treatment
    • MS Tips
  • Symptoms
    • Balance and Walking Issues
    • Breathing/Respiratory
    • Bowel Dysfunction
    • Cognitive Dysfunction
    • Crying/Laughing Uncontrollably (PBA)
    • Depression and Anxiety
    • Dizziness/Vertigo
    • Dysphagia
    • Fatigue
    • Foot Drop
    • Hearing or Smell or Taste Changes
    • Heat Sensitivity
    • Leg Weakness
    • Loss of Hand Dexterity and Coordination
    • Memory and Mutliple Sclerosis
    • Migraines
    • Numbness/Tingling/Altered Sensation
    • Nystagmus and Oscillopsia
    • Pain
    • Sexual Dysfunction
    • Sleep Issues
    • Spasticity/Spasms/Cramps
    • Speech/Swallowing
    • Urination/Bowel Problems
    • Vision
  • MS Clinics
  • MS Topics
    • Pregnancy and Infertility
    • Caregivers and Family Members
    • Employment and MS
    • Medical Costs and Insurance
    • Pediatric Multiple Sclerosis
  • Register With Us
  • Terms of Use/Privacy/HIPAA
  • MS HealthCare Journey