I believe I have had the disease for 2 years, but it became clear to me only 4 months ago. My question is for an expert.
I have been experiencing the following symptoms non stop since the beginning of winter: tingling all over my body, aching & stiff joints, muscle twitches and spasms, pain all over my body in fingers and legs, left calf cramp, stabbing pains, cognitive issues a constant buzzing sensation in my ears, vertigo, chronic visual impairment,painful lower back, burning sensations.
Now I have been to a neurologist and of course I got treated like I didn't have MS. I had an MRi done with and without contrast and also a spinal MRI without contrast. No lesions showed up HOWEVER just before I was due to get my MRi with contraat I was so fed up with the pain and symptoms that I took some oral prednisolone..I actually felt it working in an area of my brain and I believe it reduced some inflammation there. I think this may have altered my MRI with contrast results. So here I am still enduring these symptoms non stop and I have no proof of diagnosis, I know I need a treatment ASAP but I can't get one.
Can anyone give me some advice on what to do next?? I am seriously contemplating suicide because of this, I feel pain everyday and have not been able to function for 4 months straight! Is there any other sort of testing that I should push for??
Thank you Jessica from Australia
There are many causes for the symptoms you mention besides MS. It is important to find a doctor who tells you what you have, not what you do not have. The first thing to push for is an explanation for your symptoms. This will in turn lead to an appropriate treatment. If necessary, enlist the help of your primary care doctor to have a direct conversation with the neurologist regarding the differential diagnosis and management of your condition. By the way, oral prednisolone will not substantially alter the appearance of your MRI scan if you have MS.
Revere (Rip) Kinkel MD
Director of the Multiple Sclerosis Program
Professor of Clinical Neurosciences
University of California San Diego