I'd like to quit my medications, I've not had any new or enhancing lesions, no changes on my MRIs in the past 7 years. I've been on some form of DMT for the entirety of my diagnosis in 2002, and have had relatively little disease progression. Would it ever be advisable to just even take a break from meds?
The decision to continue or discontinue an MS DMT is often difficult to make and requires full knowledge of the details of your disease. Please discuss these details with your MS specialist to make this decision. If you do decide to discontinue your DMT, it is important to continue monitoring your condition with quantitative performance measures (things like 25 foot walking time, Timed up and go test, 9 hole peg test etc.) and regular MRI scans. We would obtain an MRI 6, 18 and 36 months (then at 5, 7.5 and 10 years) after stopping a DMT, but your MS specialist may have a different protocol. How the MRI is done is also important but beyond the scope of this response.
Revere (Rip) Kinkel MD
Professor of Clinical Neurosciences
Director of the Multiple Sclerosis Program
Clinical Neurosciences Director
University of California San Diego
200 West Arbor Dr
Medical Offices North MC 8687
San Diego, CA 92103
619-543-3500 (Clinic phone)