Sleep takes care of tiredness but not fatigue and that is the problem. This was one of first big symptoms I started to have and it was unrelenting and over powering. I started to miss days at work and even if I got there felt like doing nothing. If it was a warm day then I felt like someone had poured Jell-O in me and poured cement on top of me, I could barely move!
NO matter how much sleep I got it didn’t help. I would go to bed exhausted and get up feeling tired and drained. Well in time I got diagnosed with MS and to this day no one really understands why this is such a problem with MS but it is!
I can fall asleep anywhere at any time (I try not to of course). I have sat in the DR’s office doing the usual waiting and looking at floor and thinking, “would anyone mind if I just curled up and went to sleep” that’s how it is sometimes.
SO through the years this is what I have done to fight this.
- I got a handicapped Placard so at least I have some strength left to go shopping or whatever.
- Minimize the amount of walking I have to do when away from home.
- On occasion use a wheel chair, scooter or something similar so I can enjoy what ever it is I want to do and that also gives me a place to “sit”.
- Try to avoid warm places or outings for that really builds up fatigue.
- Try to stay in cooler places, use AC and fans. This helps in drawing out the heat and you feel more with it.
- Don’t over tax myself.
- Ask for help when I start to feel too fatigued.
- Break down my goals more so that I CAN do them.
- I use MOTIVATION a lot for this really spurs me on if Fatigue is gnawing at me.
- Every so often I have to give in to it for the invisible brick wall just stops me cold. I just go lay down let the tears roll, feel mad about the whole thing and try to relax and go to sleep for awhile. Then I say OK time is UP and onward again.
- I find light exercise and Tai Chi help.
- Sometimes too much sleep is not good.
- Do things that I really love it helps keep me going.
- Take a nap before I do something that might make me fatigued.
- I don’t take any meds for this because I am allergic to so much and keep in mind a lot of meds can also make fatigue worse.
- Get plenty of fresh air, springtime is perfect for that not to mention a visual feast for the eyes.
- The number one thing I do is JUST TRY TO WORK THROUGH OR AROUND IT.
- I wrestle with this every day and I know it is going to be there. So I give myself plenty of time to do things and don’t expect so much out of myself as I used to.
- I am always on the look out for better ways to do things too and try to keep things simple and easy.
I may not win the war on this but one day at a time as with all MS things and eventually I get somewhere. I have learned to live with it but more on MY terms :)