One of my personal health goals is to progress as slowly as possible with my Multiple Sclerosis.
My part of the service agreement:
- Take my MS and other meds as prescribed
- Maintain my strength and balance by exercising as planned every other day
- Walk 3,500 steps a day
- Rest when I'm tired
- Continue meaningful work at least three hours in four out of seven days
- Actively reduce manageable stress
- Continue with acupuncture, chiropractic, and massage
- Keep my neurologist and PCP informed when my status changes
- Keep my health goals in mind as we travel this journey together
- Prescribe the least amount of medication necessary to manage my MS and MS symptoms in consultation with me
- Respect my non-medical care
- Respond to my status reports and questions sent via portal within two business days
- Refer me to specialists as needed who will respect and appreciate my engaged style
- Help me be safe
- Console me when I'm scared
- Participate in my care plan when they're able
- Keep me honest
- Allow me to function to maximum capacity
Now I better share this with them. I think they'll get a kick out of it and say we're already doing it.
Danny blogs weekly at http://www.health-hats.com
Danny van Leeuwen, Opa, RN, MPH, CPHQ
Danny, an action catalyst empowering people traveling together toward best health, wears many hats in healthcare: patient with MS, care partner for several family members’ end-of-life journeys, a nurse for 40 years, an informaticist and a QI leader. Danny focuses on learning what works for people - patient-centered research, communication at transitions of care, health planning and informed decision-making, and technology supporting solutions created by and for people. He reviews PCORI research funding applications and serves as co-chair of PCORI’s Communication and Dissemination Advisory Panel. Danny is active in the Society for Participatory Medicine. Danny blogs weekly (www.health-hats.com) and was recently published in BMJ.