Here is My Question:
If my MS symptoms are coming back with a vengeance, like SEVERE cognitive issues and trouble with memory and conversation, bad nystagmus making me nauseated and hard to drive, unbearable MS hug spasm (hard to handle), and just complete confusion and tremor and just feeling awful, AND I am told to delay my Ocrevus (which is obviously sound advice right now), would it be wise to check an MRI to make sure I don’t have an acute worsening and may need it and just completely isolate? I hate the idea of taking it and chancing my life and I was all on board to delay it until the last few days. I am just in terrible shape and hoping it’s not an actual relapse. My specialist is SO hard to contact and takes weeks to get responses. This is just a very difficult time and I need help or encouragement.
The answer to your question depends a lot on your individual circumstances. It would not be possible for me to determine, based on the information provided, whether or not you are experiencing a relapse or activation of your MS. What I can do is provide so information that may help reassure you.
Overall, younger people (< 45) with relapsing, active MS (relapse and MRI activity in the year prior to starting Ocrevus ) are the individuals who respond best to Ocrevus and need it most, but even these individuals may be able to delay treatment if they've already received several every 6 month cycles.
Revere P (Rip) Kinkel, MDProfessor of Clinical Neurosciences
Director of the Multiple Sclerosis Program
Clinical Neurosciences Director
University of California San Diego
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