MULTIPLE SCLEROSIS
There are many websites with information about MS. Why is this one different?
There are many websites with information about MS. Why is this one different?
- We have done the work of searching the web to find the most valuable information sources and put them in one, easy to navigate website
- We bring the MS community together. Any information from non-profit/patient advocacy groups, research organizations, drug and medical equipment companies, hospitals, HMOs, etc. that will help people with MS is included
- MS specialists/experts review the information on this website. We also have a physician blog featuring one of the leading experts in MS (see our blog pages!)
- We do NOT sell or share your names/emails, etc. with anyone
- Information and solutions are provided to help you manage symptoms
- Products and services recommended have come from people with MS and/or experts who treat patients with MS
Here is the latest MS research news...
TIP(s) OF THE WEEK (from people with MS):
TIP: Using silverware can be a challenge for those with hand dexterity/coordination problems. A lot of people shy away from the built-up cutlery because it looks so different from regular cutlery. Check out the link at the bottom of this page for the Knork 5 piece flatware set. You will see that there is a company that makes adapted cutlery that looks quite nice and doesn't stand out. It makes me feel less self-conscious especially when I'm having friends over.
TIP: If you don't have the opportunity or time to attend a meditation class, check out this link for a website that has free online classes, so you can teach yourself and meditate in the convenience of your own home. http://www.onlinemeditation.org/meditation-class-1/
QUESTION OF THE WEEK (from people with MS):
Q. How can you tell if steroids are or aren't helping a particular flare? For example, if steroids are given very soon after the symptom onset, and if symptoms keep on getting worse for another 10 days after the last day of steroid admission, and then take a month to (more or less) go away, would you that steroids worked or not?
A. Very good question and hard to give an answer that is true in all circumstances. Generally, steroids start working within the first week if not the first few days. A person still worsening 10 days after starting steroids is probably not responding, even though we usually use the two week cutoff to define a non-responder. In the example given it is more likely that the improvement was spontaneous. After all, we do call this phase of the disease relapsing remitting for a reason.
A. Very good question and hard to give an answer that is true in all circumstances. Generally, steroids start working within the first week if not the first few days. A person still worsening 10 days after starting steroids is probably not responding, even though we usually use the two week cutoff to define a non-responder. In the example given it is more likely that the improvement was spontaneous. After all, we do call this phase of the disease relapsing remitting for a reason.
