Where Did All Our Friends Go?

9/16/2015

Receiving a chronic and life changing diagnosis, such as MS, brings changes to your life that are both expected and unexpected. When we first received our daughter’s MS diagnosis 16 years ago, we had the love and support of our families and of our friends. We were constantly asked if there was anything we needed for our daughter and for our older children. As time passed and her disease was not as obvious to the eye, we became used to the remarks of “If she looks good, she must be fine”. With that the concerns and offers declined as well.

As our daughter became less able to maintain normal activities of her friends, it was heartbreaking to see them move on with their lives without her. Her fatigue and cognitive problems kept her from competing in sports and nightly social activities, such as her Church Youth Group. I am not sure she fully understood or even noticed that her friends were living their lives without her, but it broke my heart to see her alone.

The unexpected result of her MS is seeing that our adult friends are following the same path. Yes, they do realize the extent of her illness and how it has made it impossible for us to leave her home alone. What has happened is that they have also continued living their lives without realizing that we are very limited to join in. We are at the stage of our lives when we thought we would be able to come and go on a whim, without having to worry about having a babysitter. The evils of social media lets us see how our lives could have been had MS decided not to enter our lives.

I wish that family and friends realized that this is a lifetime disease that does not get any easier to live with. Yes, we learn to live with the demands that MS has put on us. But this does not lessen the need for us to have help and moral support from those in our lives. Being a caregiver can be a very lonely and isolating job. I am thankful for my MS Caregivers I have met on social media, but to have our friends remember that we are still here fighting this battle would benefit everyone.

-Laurie

4 Comments

Lucy link

6/4/2017 01:56:03 pm

My husband is having severe issues with cognitive ms issues. How has this impacted your daughter? I am grieving having a spouse to have normal conversation with.

Michele Medley

8/17/2020 11:37:04 pm

After bouts with many neurologists I was diagnosed of MULTIPLE SCLEROSIS, I was placed on medications which helped but my health was fast declining. Finally, I was introduced to Mayaka Herbal Clinic and their effective Multiple Sclerosis protocol. This protocol relieved symptoms significantly, even better than the medications I was given. Visit ww w. mayakaherbalclinic. c om. First month on treatment, my tremors mysterious stopped, had improvement walking. After I completed the treatment, all symptoms were gone. I live a more productive life.

Jacqueline Haller

6/19/2021 02:38:18 am

Four years ago, I went numb from the waist down. After quite a few MRI’s, spinal tap, I was diagnosed with Multiple Sclerosis. I was on Avenox for almost 2 years, i had 1 year of monthly steroids IV, had to stop due to hip pain. Through my physiotherapist i learnt about a MULTIPLE SCLEROSIS HERBAL TREATMENT from K.H.C (Kykuyu Health Clinic) and their success rate with the treatment, i immediately started on the MS treatment, i experienced decline in major symptoms including hand tremor, back pain, difficulty walking, muscle paralysis and weakness, uncomfortable tingling and burning, fatigue, urinary retention,double vision, slurred speech difficulty swallowing, numbness. Visit www. kykuyuhealthclinic. com. I knew that a positive attitude is everything and to just believe, I’m in control of my life again….

Michele Garvey

10/22/2022 10:15:05 am

Four years ago, I went numb from the waist down. After quite a few MRI’s, spinal tap, I was diagnosed with Multiple Sclerosis. I was on Avenox for almost 2 years, i had 1 year of monthly steroids IV, had to stop due to hip pain. Through my physiotherapist i learnt about a MULTIPLE SCLEROSIS HERBAL TREATMENT from H.H.C ( Health Herbs Clinic ) and their success rate with the treatment, i immediately started on the MS treatment, i experienced decline in major symptoms including hand tremor, back pain, difficulty walking, muscle paralysis and weakness, uncomfortable tingling and burning, fatigue, urinary retention,double vision, slurred speech difficulty swallowing, numbness. I knew that a positive attitude is everything and to just believe, I’m in control of my life again…. this alternative Multiple Sclerosis treatment is a breakthrough. Visit their website www. healthherbsclinic. com.

Where Did All Our Friends Go?

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