My mother got diagnosed with MS in 1995, she has progressive form of the disease. In 2004 she suffered 4D burns which caused her right leg to face a permanent contracture. She’s currently on two medications i.e Baclin and Citanew.
She’s completely bed ridden; can sit with assistance. Four years ago she started having problems with her short term memory. Psyiotherapy is conducted for the past 8 years. The issue right now is that she’s started developing problems with her speech i.e. she sounds gibberish sometimes although when she talks in a high pitch voice; it’s clear.
Her speech is the only thing that she can communicate with; we’re worried about how to prevent it from further deterioration. Also; someone suggested hal suit 6 might help her with a better life. We live in Pakistan; what do you think? Would purchasing hal suit for her be a better idea? Also; what can I do about her speech? Thank you.
She is not likely to benefit from a Hal suit or any exoskeleton for standing or walking with her severe contractures and long term immobility. When people are bedridden or immobile for a long period of time they develop severe osteoporosis and are at high risk of fractures with prolonged standing .
It is hard to recommend a solution for her speech; she will require an evaluation by a speech therapist to determine if the issue is due to impaired phonation or a central language difficulty.
Revere (Rip) Kinkel MD
Professor of Clinical Neurosciences
Director of the Multiple Sclerosis Program
Clinical Neurosciences Director
University of California San Diego