I have been on the Terry Wahl's protocol for 6 months now. I was getting better, rode on my stationary bike 26 miles this month and things were looking up. Well, I am going through a relapse now, and I'm barely walking. The side effects on the meds are ridiculous, and I read that people with progressive MS don't really benefit from meds at this point. I see that it took some time for Terry Wahl's to recover. But it's the relapse that scares me. I shouldn't be regressing. Any thoughts?
Relapses indicate ongoing inflammatory disease activity, and up to 30% of patients with "progressive" MS can show signs of inflammation in the brain and spinal cord. The reason why I point this out is that the disease modifying therapies (11 FDA approved DMTs to date) have all shown that they mitigate inflammatory disease activity. While side effects are recognized with any DMT, many times they are short lived and managable with the help of a trained MS specialist. I would encourage you to read through my prior blog post (HERE) and discuss this with your physician.
A. Scott Nielsen MD