Hi, I am 25 and was officially diagnosed with MS July 2013. ( I have had symptoms since I was 10). The catalyst that sent me to the doctor in 2013 was dizziness and falling (along with numbness.)
I am currently relying solely on a wheelchair for mobility (December of 2013 I had been using a cane/walker.)
I have had various "second opinions " in my state, and all of the doctors agree that I have a very "aggressive form" of MS, but no one has yet to diagnose me with anything other than RRMS. Many of my symptoms have been slowly progressing for the last 16 years, and I have been repeatedly told that I "don't fit" in a category for the progressive forms of MS while not fitting into RRMS fully either.
This does sound frustrating. If you are able to travel for further opinions, we may be able to provide you with some options. Let us know where you live currently so we can assist you. You can email us at email@example.com or go back to where you asked this first question and you can let us know there if you prefer.
Revere (Rip) Kinkel MD
Director of the Multiple Sclerosis Program
Professor of Clinical Neurosciences
University of California San Diego