My son is two years old and has been diagnosed with MS. He has 2 lesions on the spin and 9 Oligoclonal bands, but yet his doctor hasn't started him on MS medications. He gets IVIG (12g) every 3 weeks and solumedrol (30mg) every week... What are your thoughts?
There are no approved therapies for pediatric MS, because they have not been adequately studied. It is hard to make specific recommendations without knowing the details of a case. IVIG has been used in the past with variable success. Many clinics have used therapies that are FDA approved for adults in children this young, but there are a lot of variables that go into this decision. With rare diseases like pediatric MS, we always recommend seeking formal second opinions if there are unanswered questions.
Benjamin M. Greenberg, MD, MHS
Director, Transverse Myelitis and Neuromyelitis Optica Program
Director, Pediatric Demyelinating Disease Program
Department of Neurology and Neurotherapeutics
Department of Pediatrics
Cain-Denius Scholar of Mobility Disorders
University of Texas Southwestern Medical Center