I was diagnosed with PPMS in 2009. In 2013 in began to have a sensation of a burning tongue. I don't know if this could be related to MS. Sometimes it burns so bad that I can't eat. This has been going off and on for approx. 3 yrs. any other possible causes have been ruled out. Your thoughts would be greatly appreciated.
Burning tongue syndrome is rarely caused by MS. This is more often caused by nutritional deficiencies, viral or fungal infections or medications. When MS causes a burning sensation in this region it is usually a burning mouth syndrome with involvement of tongue, buccal mucosa (inside mouth lining and gums) and lips.
Please see your doctor to make sure you do not have a treatable cause for a burning mouth. Most of the tests that need to be done to exclude nutritional deficiencies are not routine tests and may have never been done in your case.
Revere (Rip) Kinkel MD
Director of the Multiple Sclerosis Program
Professor of Clinical Neurosciences
University of California San Diego
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