I am a 40 year old female. I had an episode of numbness and tingling and then a tremor about a year and half ago. We did MRIs of my spine and brain and they came back normal. All blood tests are normal. I saw an MS specialist and rheumatologist. All tests were normal. I just had an MRI brain a few months ago and it was normal. I still get tingling and numbness but it goes away quick. I have had bladder spams since this all started. Stiffness comes and goes in my legs. It is hard to climb stairs. I get tired easily. I was tested for Lyme disease and it was negative. Does MS take some time to show up? The MS specialist said the MRI is very definitive (99%) and she said MS is a very low possibility at this point. What can an expert tell me?
It is quite uncommon for people with definite Multiple Sclerosis to have normal imaging of the brain and spinal cord over a several year interval.
You should ask your doctor to tell you what he thinks is going on instead of telling you what you don’t have wrong with you. Prepare yourself with a list of questions and go to your meeting open minded and with someone you trust as a second ear. Try not to make up your mind about what is going on before you’ve heard completely from the doctor. If this is not satisfactory, it may be time to get a second opinion.
Revere (Rip) Kinkel MD
Director of the Multiple Sclerosis Program
Professor of Clinical Neurosciences
University of California San Diego